the social world of children with hematological conditions

this is the chapter i have been writing since mid-august. roughly 3 months on the making and i am not getting there. i still need to focus more my approach. i want to show the 'non-professional' work those concerned others put, how they organize themselves in relation to the irruption of these illnesses in their children's lives, how they have to be separated for months or even years, how they need to travel and/or relocate themselves, how they need to learn new skills and enhance their abilities to mobilize resources within the children's hospital and outside it in governmental offices, ngos, and other institutions. this chapter is the last i need to write but i have to say that only one of the seven is more or less ok. the rest need huge re-writing and reconceptualizing and retunning my discussion and what i bring as new to this field of tensions.
alright. here am i.

DOLOR

cual es la diferencia entre dolor y sufrimiento (si es que hay alguna diferencia) y cual es la relacion entre dolor, sufrimiento y amor?

es doloroso escribir sobre el dolor. sobre todo cuando no esta claro a donde voy...

empezando otro capitulo

veremos como sale. por ahora 2p. hoy lo vi a BM, mi supervisor, y me dijo q esta leyendo un capitulo que le mande antes. dice q no esta tan mal pero que hay que enfocarlo mas. foco. foco. foco. mientras tanto la semana pasada nos fuimos con A y F de campamento con una pareja de amigos y su beba y otros amigos de ellos. la pasamos rebien.

terminé el capitulo

y se lo mandé a AB. no estoy contento con lo que salió. espero poder mejorarlo. por otro lado, hoy a la tarde jugue 1.30h al disc golf con F y la pasamos muy bien. estan haciendo dias hermosos.

ejem

So I didn't update this for some time. It seems something is emerging although I am not so happy with it. I am trying to have a draft of this chapter by Sunday so I can exchange it with AB (she will give me one chapter of her book). We'll see. I am trying to talk about children and childhood but I still feel that children are not 'talking' too much which is a big contradiction... I will try to fix this.

start all over

Ok. This is not working. I tried to print it, working with scrivener, working with MS word. It didn't work. So, what I did was to start a new document from scratch. And be more inductive, forget about the big concepts I was thinking. Just go slowly from one idea to another. I will use staff I already wrote but I will try to work this way from the bottom up. We'll see how it ends.

still not clear

trying my best to clarify my thoughts. i feel i will make it, but right now it is unclear where i am going with this chapter.

on another note, here is a good quote from deleuze about children

"Parents are themselves a milieu that children travel through: they pass through its qualities and powers and make a map of them. (…) There is never a moment when children are not already plunged into an actual milieu in which they are moving about, and in which the parents as persons simply play the roles of openers or closers of doors, guardians of thresholds, connectors or disconnectors of zones. The parents always occupy a position in a world that is not derived from them. Even with an infant, the parents are defined in relation to a continent-bed, as agents along the child’s route (Deleuze. 1997. What Children Say, Essays Critical and Clinical. Translated by Daniel W. Smith and Michael A.